The Role of PAGs in European Decision-Making Processes  In several European countries, patient organizations are playing an increasingly crucial role in Health Technology Assessment (HTA) and regulatory decision-making:  – European Union: The new HTA Regulation, set to take effect in 2025, encourages patient associations to participate in Joint Scientific Consultations and Joint Clinical Assessments, fostering […]

Sylvain Forget Co-Founder & Senior Partner, France 1. What inspired your dedication to the rare disease landscape? My dedication to the rare disease landscape stems from a deep conviction that every patient, regardless of the rarity of their condition, deserves access to appropriate care, treatment, and support. After many years working in non-orphan pharma sector, […]